The Trisomy 21 Research Society was founded to promote fundamental and translational research on Down syndrome, stimulate interdisciplinary investigation, and apply new scientific knowledge to improve the quality of life for people with Down Syndrome.
The annual report of T21RS for 2024 (January 1, 2024 – December 31, 2024) has been sent to the (paid) members on May 30th, 2025. Due to the international composition of the Executive Board and the members of the society, the annual reports are published in English. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: June 30th, 2025
General Assembly meeting: June 30, 2025 in Paris and online (+digital vote)
The annual report of T21RS over 2023 (January 1, 2023 – December 31, 2023) has been sent to the (payed) members on May 17th, 2024. Due to the international composition of the Executive board and the members of the society, the annual reports are published in English. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: May 17th, 2024
General Assembly meeting: June 5, 2024 in Rome (+digital vote)
The annual report of T21RS over 2022 (January 1, 2022 – December 31, 2022) has been sent to the (payed) members on May 15th, 2023. Due to the international composition of the Executive board and the members of the society, the annual reports are published in English. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: May 15th, 2023
General Assembly meeting: June 19, 2023 in Barcelona (+digital vote)
The annual report of T21RS over 2021 (January 1, 2021 – December 31, 2021) has been sent to the (payed) members on May 2nd, 2021. Due to the international composition of the Executive board and the members of the society, the annual reports are published in English. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: May 2nd, 2022
General Assembly meeting: June 9, 2022 in Long Beach (during T21RS International Conference)
The annual report of T21RS over 2020 (January 1, 2020 – December 31, 2020) has been sent to the (payed) members on May 11th, 2021. Due to the international composition of the Executive board and the members of the society, the annual reports are published in English. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: May 11th, 2021
General Assembly meeting: June 8, 2021 virtual (+ digital vote)
Unanimous vote in favor (68 attending members with voting rights)
The annual report of T21RS over 2019 (January 1, 2019 – December 31, 2019) has been sent to the (payed) members on June 9th, 2020. Due to the international composition of the Executive board and the members of the society, the annual reports are published in English. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: June 15th, 2020
General Assembly meeting: July 8, 2020 in Barcelona (+ digital vote)
Unanimous vote in favor (11 members voted, all in favor)
The annual report of T21RS over 2018 (January 1, 2018 – December 31, 2018) has been sent to the (payed) members on May 7th, 2019. Due to the international composition of the Executive board and the members of the society, the annual reports are published in English. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: May 7th, 2018
General Assembly meeting: June 7, 2019 in Barcelona (during T21RS International Conference)
Unanimous vote in favor (all 132 attending members voted in favor)
The annual report of T21RS over 2017 (January 1, 2017 – December 31, 2017) has been published on May 23, 2018. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: May 23, 2018
General Assembly meeting: July 10, 2018 in Groningen (+ digital vote)
Unanimous vote in favor (54 members voted, all in favor)
The annual report of T21RS over 2016 (January 1, 2016 – December 31, 2016) has been published on February 22, 2017. The annual report includes a summary of the efforts of the T21RS committees, as well as the treasurer’s financial report.
Publication date: February 22, 2017
General Assembly meeting: June 10, 2017 (Chicago, during T21RS International Conference)
Unanimous vote in favor (all 105 attending members)
The annual report of T21RS over 2015 (January 1, 2015 – December 31, 2015) has been published on June 19, 2016. The 2015 annual report consists of three parts: a general annual report, a financial report and the annual report of the Committee for Science & Society. All thee sections are compiled in one document, that can be downloaded below.
Publication date: June 19, 2016
General Assembly meeting: June 10, 2017 (Chicago, during T21RS International Conference)
Unanimous vote in favor (all 105 attending members)
The Trisomy 21 Research Society (T21RS) has been founded in April 2014 in Groningen, The Netherlands. The annual reports can be downloaded by clicking the respective link; they concern the first calender year (April 2014 – December 2014).
Publication date: June 16, 2015
On this page, you will find an overview of information about the Trisomy 21 Research Society (T21RS) that has to be published according to the rules and regulations of the Dutch Tax Administration (Belastingdienst) for Public Benefit Organisations. T21RS is recognized by the Dutch Tax Administration as Public Benefit Organisation (in Dutch: Algemeen Nut Beogende Instelling, ANBI).
Trisomy 21 Research Society (T21RS) is a non-profit society (in Dutch: vereniging) established under the laws of the Netherlands, having its registered statutory seat in the municipality of Groningen, and its principal place of business at the Wageningen University & Research, Stippeneng 4, 6708 WE Wageningen, listed in the trade register under number 60501162 (KvK Netherlands Chamber of Commerce number). The articles of association, i.e. the statutes, can be downloaded here.
Statutory name
Trisomy 21 Research Society
Also known as
T21RS
RSIN identification number
853938283
Statutory seat
Groningen, The Netherlands
Registered office/place of business
WUR, Helix 124, Stippeneng 4, 6708 WE Wageningen (Netherlands)
Contact details
Trisomy 21 Research Society: info@t21rs.org
Technical secretariat: secretariatecnicat21rs@bcocongresos.com
The society is a non-profit scientific organisation, for the promotion of research on Down Syndrome (trisomy 21). For this purpose the society aims: a) to facilitate the interaction between scientists by holding scientific meetings, b) to promote education and training of young researchers (students, PhD students and postdoctoral researchers) interested in Down Syndrome, c) to promote the understanding of, and involvement in Down Syndrome research among the general public, d) to promote the interactions between scientists and patient and family associations, and e) to promote the interactions between scientists and (pharmaceutical) industries.
Other board members (committee chairs)
Audit Committee
Executive Board members do not get paid for their activities for T21RS. They are entitled to reimbursement of costs incurred in the execution of their duties and to non-excessive attendance fees. Board members commit themselves voluntarily and free of charge. T21RS does not currently employ any personnel.
See the document here
Annual report 2022 (01-01-2022 – 31-12-2022)
Publication date: 15 May 2023.
Annual report 2021 (01-01-2021 – 31-12-2021)
Publication date: 2 May 2022. Unanimous appoval by 154 members with voting rigths attending at the General Assembly held on 9th of June 2022 in Long Beach during the forth T21RS International Conference and including digital votes in the week preceding the General Assembly
Annual report 2020 (01-01-2020 – 31-12-2020)
Publication date: 10 May 2021. Unanimous approval by 68 attending members with voting rights at the General Assembly held on 8th of June 2021 during the 2021 virtual T21RS International Conference.
Annual report 2019 (01-01-2019 – 31-12-2019)
Publication date: 15 June 2020. Unanimous approval by all 11 attending members with voting rights at the General Assembly held on 8th of July 2020, including digital votes in the week preceding the General Assembly.
Annual report 2018 (01-01-2018 – 31-12-2018)
Publication date: 7 May 2019. Unanimous approval by all 132 attending members with voting rights at the General Assembly held on 7th of June 2019 in Barcelona during the third T21RS International Conference.
Annual report 2017 (01-01-2017 – 31-12-2017)
Publication date: 23 May 2018. Unanimous approval by all 54 attending members with voting rights at the General Assembly held on 10th of July 2018, including digital votes in the week preceding the General Assembly.
Annual report 2016 (01-01-2016 – 31-12-2016)
Publication date: 22 February 2017. Unanimous approval by all 105 attending members with voting rights at the General Assembly held on 10th of June 2017 in Chicago during the second T21RS International Conference.
Annual report 2015 (01-01-2015 – 31-12-2015)
Publication date: 19 June 2016. Unanimous approval by all 105 attending members with voting rights at the General Assembly held on 10th of June 2017 in Chicago during the second T21RS International Conference.
Annual report 2014 (17-04-2014 (establishment) – 31-12-2014)
Publication date: 16 June 2015
In the letter below (dated February 2022), the president of T21RS (Dr. W.Mobley) summarizes the policy plan for 2022/2023.
We are at an important stage in the society’s development. Over the past few decades, members of the society have laid the foundations of knowledge on which others can build. They have successfully lobbied for increased research support, and there is finally a critical mass of researchers, tools and interest to tackle several aspects of trisomy 21 that will ultimately help to address conditions that often co-occur with Down syndrome. Soon, there will also be more data and new resources available due to increased funding for Down syndrome research through funding via the NIH’s INCLUDE programs and recent awards by the EU via their JPND and Horizon 2020 calls. Such growth in activity is cause for celebration – the research community should be proud of these achievements and honour those that worked to achieve them.
Much of our success is due to the support from several Down syndrome organisations from across the world. We need to remain closely aligned with the Down syndrome community to ensure we maintain a focus on their needs. With that in mind, one of our important goals over the next few years will be to strengthen existing partnerships by encouraging active input from our supporting partners. This will be led by the Science and Society committee. We will continue to encourage a strong presence for people with Down syndrome, their carers and organisations at our next conference in California in 2022. We will build on links with other groups and organisations, particularly those outside of Europe and the US, and we plan to initiate new regional chapters in other parts of the world. The executive will regularly consult with its members for ideas and connections on how to expand the society beyond our traditional base.
We will continue to support the Down syndrome research community to ensure equitable and maximal use of new biobanks, tools and data sources, whilst being sensitive to the regulatory aspects common to research across countries and continents. We will build on ongoing efforts by the clinical and preclinical committees to catalogue potential resources, compare and standardize methods where necessary, and encourage an open approach to data, tools and research findings. To support these activities, we will be providing the committees with an annual budget, and to ensure increased visibility and dissemination we are working on a new website, and more active use of social media.
Finally, with a maturing field there are new responsibilities, including the need for active engagement in translation and implementation of new discoveries. We will work to establish an Industry workgroup as vehicle to strengthen links between the society, its members, and potential industry partners. In addition to this, we will strengthen links with clinical groups to support efforts to develop guidance and implementation.
T21RS has from the beginning aimed to build a strong future by developing and supporting young investigators. We will ensure that the society continues to encourage the development of young investigators though our ongoing young investigator programmes, travel and conference grants and prizes. The education committee will establish a series of regular webinars to engage the growing cadre of established and emerging Down syndrome researchers.
The next few years is an important and exciting time to be part of the Down syndrome research community; through these activities the T21RS aims to make a real difference.
